Traditional academic and research publications may include general ideas that may eventually improve programs. Outcome research may describe potential benefits of specific interventions to specific people. For those seeking to create or improve programs need specific guidance right now, I offer case studies of programs I have developed, led, consulted to, learned about, imagined, or experienced first hand as the father of a daughter with multiple, complex disabilities. These stories set the context for opinions and lessons that may help move beyond the ideas suggested by research, to implementation and impact on the scale needed to make real differences in the lives of people living with ASD and related conditions.
Click on any description to read more.
Adventures with Margot
Episodes in my daughter's life illustrate breakdowns in the systems of support, and gaps in research regarding critical areas for children and their caregivers.
Transition Pathways Proposal
A proposal to develop transition pathways to college and work for young adults with ASD, balancing program development and incubation with targeted increases in services.
Making prevalence relevant, again
Updated estimates of ASD’s prevalence have created compelling headlines and invited speculation about ASD's causes. Re-interpreting prevalence research may help to close specific gaps in implementation, and offer insights into the nature of ASD itself.
Failure to Launch
Why is it that so many new programs of services and training fizzle despite all the funding and fanfare? I describe the most common errors found in the lack of leadership and planning, and outline a timetable for a successful launch.
From white elephants to gooooals for meaningful program growth and impact, a series of other opinions and stories about the challenges of implementation,
Gooooal - A better life!
Few programs of research, training, and policy - and even some services - actually result in verifiable improvements in the lives of people with ASD. Set goals that demonstrate such outcomes to ensure meaningful program growth and impact.