Background

ASD Roadmap

ASD Roadmap - 2011---

Delivering services that are important and effective

People on the spectrum may need many different services from many different people and agencies, that may be very specialized, expensive, or difficult to access, and that change with development. How do you determine what is important and effective?

I help agencies to determine what practices and services are important and effective: setting priorities using the latest policy and evidence-based practices, drawing from model programs, building cross-domain networks and cross-disciplinary models of care, and focusing on outcomes that improve quality of life by considering the unique needs and challenges faced by parents.

I then help agencies how best to deliver these services; how to organize the delivery of services, and how to identify qualified people to deliver these services.  Other similar kinds of support includes helping you to improve training and leadership. Examples of services I have helped to develop are listed below.

Examples

ASD Identification

Effective treatment begins with early screening and diagnosis.

Screening: As a follow-up to a bilingual program of training in the use and interpretation of the Checklist for Autism in Toddlers by community based practitioners, I provided follow-up screening and diagnostic assessments.  I also developed and implemented a program using trainees from a variety of disciplines to incorporate ASD screening for into a volunteer program in homeless shelters.

Diagnosis: Over a 5 year period, I provided diagnostic and treatment services and acted as the team leader for a bilingual, multidisciplinary program for preschoolers with ASD in a  regional psychiatric hospital. This was integrated into a state-funded program of research in early markers of ASD.

Educational classification: I was involved in leading several hundred multidisciplinary assessments for the purpose of the educational classification of ASD while leading a statewide public school program for students with autism.

Behavior Support

Problem behavior is the single factor most likely to lead to placement in specialized, expensive, and restrictive programs.

In hospitals: I was responsible for day-to-day clinical oversight of an in-patient treatment program for young people on the autism spectrum in behavioral crisis.

In schools: I provided oversight for behavior support across the a statewide public school program for students with autism, including a unique system of independent peer review that contributed to extremely low rates of in-patient hospitalization or residential placement.

Crisis management: I provided oversight to improve the appropriate use of seclusion and physical restraint in a statewide public school program for students with autism, contributing to extremely low rates of in-patient hospitalization or residential placement. I was also responsible for minimizing the use of seclusion and physical restraint in an in-patient treatment program for young people on the autism spectrum in behavioral crisis .

Comprehensive Planning

Success requires matching a broad set of goals to powerful methods, delivered by a team with a a shared vision shaped with advocates.

Comprehensive programs: I provided oversight to the principal site of a statewide public school program (with more than 200 staff serving more than 300 students) during much of my 9-year tenure as Statewide Director, and was responsible for responding to any concerns raised across the state regarding the program or placement of students with ASD.

Extended supports for quality of life: I provided day-to-day oversight of programs of Extended Educational Services (including IEP-team discussion, case presentations to state agencies, and programs of training to EES staff), and Extended Support Services (in-home respite). These remain only public school program in the USA to offer such services utilizing its own staff.

Coordinated care: I have led multidisciplinary teams in school (Delaware) and hospital (Pennsylvania & Quebec) settings.

Transition planning: I designed a comprehensive two year, college transition program for youths on the spectrum that addressed employment, community engagement, independent living, and continuing education, and that introduced innovations in delivering services (like ways to incubate new programs for services for partner agencies).

The logo is adapted from Joaquim Alves Gaspar's drawing of Pedro Reinel's compass rose.