Funded through the Maternal Child Health Bureau at the Health Resources and Services Administration in the Department of Health and Human Services and administered by the Association of University Centers on Disabilities, the Leadership Education in Neurodevelopmental and Related Disabilities (LEND) grants provide interdisciplinary training to enhance the clinical expertise and leadership skills of professionals dedicated to caring for children with neurodevelopmental and other related disabilities and special health care needs. The Combating Autism Act of 2006 Public Law 109-416 brought additional funds to the LEND program to promote education, early detection, and intervention in autism and related developmental disabilities.
LEND embodied values I had promoted throughout my career: multidisciplinary teamwork, parent engagement, community-based programs, and the need to build both awareness and expertise. I was recruited to CHOP just as a new emphasis on (and funding for) autism was helping to re-shape LEND. This gave me the opportunity to shape new programs of training and research from the ground up (to my knowledge, all of the programs I initiated within LEND continue to thrive). I served as Autism Training Director for the LEND program for graduate and post-graduate level fellows from Audiology, Dentistry, Developmental and Behavioral Pediatrics, Family Fellowship, Genetic Counseling, Health Care Administration, Nursing, Nutrition, Occupational Therapy, Physical Therapy, Psychology, Social Work, Special Education, and Speech-Language Pathology.
On this site
Partners
Leadership and Education in Neurodevelopmental and Related Disabilities
The multidisciplinary approach was central to the ASD LEND Training Clinic I created within the Regional Autism Center (RAC) at CHOP, in collaboration with Dr Susan Levy. The Training Clinic was a multidisciplinary assessment team for young children referred for an ASD diagnosis, operating one day each week for 11 months of the LEND annual cycle. Over the LEND year, ASD LEND Fellows assumed more and more responsibility for all aspects of assessment: within 6 months, they were responsible for assessment, report-writing, and family feedback for one case, and by the end of the year assumed this responsibility for up to 3 cases each week. The weekly clinic helped to reduce the waiting list for assessments at RAC (as long as 18 months prior to my tenure) and provided an opportunity for other LEND trainees to observe diagnostic assessments from start to finish.
Too many workshops are one-size-fits-all, failing to adapt the content and intensity to the specific role a professional might play. I extended the tiered and tailored model I had relied on in Delaware (Doehring, 2013) in the design of LEND. For example, I created an 18-hour training (Autism I) for all LEND fellows to include: 4 hours of traditional workshops on assessment and intervention; A 1 hour workshop co-taught with the parent of a child with ASD on the experience of families with ASD; A 1 hour workshop on the administration and interpretation of ASD screening measures (as part of a program requiring that trainees conduct or participate in ASD screening described elsewhere), and; 12 hours observing actual assessments conducted in the LEND ASD Training Clinic (see above).
I created an intensive, Autism II cycle for 4 ASD LEND Fellows who focused their LEND experience on ASD to include: 45 hours of advanced training in assessment, intervention, research, and policy; Supervision from myself and from their discipline advisor for their work in the LEND ASD Training Clinic described earlier, and; Participation in the NextSteps workshops to prepare them to provide such training in the future (Doehring, 2011). Over the course of their LEND training, they gradually assumed a greater role until the final workshop during which they assumed full responsibility for delivering content and answering questions pertaining to their discipline. The development of this advanced training served as the base for the addition of a new position at CHOP, a specialized predoctoral psychology internship. This advanced training also served as the base for the creation of a new role for Practicing Nurse Practitioners (PNPs), who began to play a more active role in the diagnosis of ASD in certain types of cases (Ott, Levy, & Doehring, 2010).
I included LEND II Trainees in the NextSteps workshops, to expose them to the challenges faced by parents of newly diagnosed young children, and to prepare them to provide such training in the future (Doehring, 2011). Over the course of their LEND training, they gradually assumed a greater role until the final workshop during which they assumed full responsibility for delivering content and answering questions pertaining to their discipline.
I helped to develop community-based research projects focused on ASD and culminating in a conference presentation. Examples included aligning treatment recommendations between hospital and community providers (Manfredi, Folsom, & Doehring, 2010), defining a role for Nurse Practitioner in ASD diagnosis (Ott, Levy, & Doehring, 2010), and assessing the knowledge of parents and professionals before and after an autism workshop (Pucci, Berry, & Doehring, 2010).
A program to offer ASD screening within the Homeless Health Initiative. The Homeless Health Initiative (HHI) is a volunteer outreach program providing medical and dental services to children in area shelters and assist families in accessing important health care services including health insurance, primary care and specialty care. I created a program to offer ASD screening within HHI. LEND fellows participated in regular visits with of CHOP professionals in the homeless shelters of West Philadelphia. They conducted ASD screening for young children using the Modified Checklist for Autism in Toddlers (M-CHAT) and the Social Communication Questionnaire (SCQ).
My Presentations and Publications
(2011). The LEND ASD Training Clinic at The Children's Hospital of Philadelphia. Combating Autism Act Initiatives. Bethesda, MD.
With Rosemarie Manfredi & Melissa Folsom. Facilitating Communication Between Academic Medical Centers and Community Providers: Examining the Alignment of Evaluation Recommendations with Treatment Plans for Children with Autism Spectrum Disorders.
With Megan Ott & Susan Levy. Early Autism Screening and Identification Clinic (EASI): A Nurse Practitioner & Physician Clinic Model.
With Kristy Pucci & Leandra Berry. Learning About Autism: Assessing the Knowledge of Parents and Professionals Before and After an Autism Workshop.
August, 2010. National Autism Conference. State College PA.
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