AutismMatch Regional Research Registry

I served as Principal Investigator for a two-year grant funded by the National Institutes of Health to create an autism research registry, AutismMatch. I led the team that wrote the grant proposal, developed the back-end database, and designed and launched the registry in April 2010. Under my leadership, AutismMatch was the first on line research protocol at CHOP to include the collection of personal health information, the first to integrate on line completion of both the Modified Checklist for Autism in Toddlers and the Social Communication Questionnaire, and one of the first at CHOP to utilize the on-line RedCAP protocols for database management and survey collection.